The Case for Inclusion 2019

Advocacy Blueprint

The Case for Inclusion 2022 goes beyond offering comprehensive data on the state of community-based disability services in America to offer a blueprint for how lawmakers can put these services on more solid ground.

To do this, the 2022 edition the Case for Inclusion makes concrete recommendations for what key actors can do, including the Biden administration, the 117th Congress, state governments, and providers and other stakeholders.

The Case for Inclusion 2022 maintains that the Biden Administration should:

  • Incentivize states to use federal funding to address each component of the workforce crisis.
  • Require the Centers for Medicare and Medicaid Services (CMS) to include HCBS under the equal access rule.
  • Require the U.S. Department of Labor to establish a Standard Occupational Classification (SOC) for DSPs through the U.S. Bureau of Labor Statistics.

The Case for Inclusion 2022 maintains that the 117th Congress should:

  • Appropriate funding to rebuild the DSP workforce, as well as the broader HCBS infrastructure.
  • Prioritize funding to incentivize the development of DSP pipeline programs.
  • Predicate state funding opportunities on commitments to review and adjust payment rates at least once every three years.
  • Compel the U.S. Bureau of Labor Statistics to establish a SOC for DSPs.

The Case for Inclusion 2022 maintains that states should:

  • Apply for each federal funding opportunity targeting supports and services for individuals with IDD and focus spending plans on stabilizing the direct support workforce crisis.
  • Adjust reimbursement rates in the immediate term; then enact legislation or regulations to guarantee regularly recurring reimbursement rate reviews to ensure DSP wages are competitive against other industries.
  • Prioritize people with IDD and the community providers that support them in the distribution of tools for mitigating the risk of COVID-19, including vaccines, testing and PPE.

The Case for Inclusion 2022 maintains that providers and other advocates should:

  • Advocate with state and federal leaders to ensure community providers and people with IDD can access life-saving tools to provide support and adapt through the COVID-19 pandemic.
  • Stay current with and apply for state and federal funding opportunities created to offset the impact of COVID-19.
  • Urge state leaders to leverage federal funding opportunities to stabilize the direct support workforce crisis by increasing reimbursement rates and creating systems of review to ensure rates keep pace with inflation, rising minimum wages and other drivers of increased labor costs.
  • Encourage states to develop and contribute to as deep an understanding of the workforce crisis as possible by participating in the NCI Staff Stability Survey.

Additional Advocacy Resources

  • ANCOR Amplifier: The ANCOR Amplifier is a one-stop-shop for learning more and taking action on policy priorities that better enable providers to serve people with IDD in the community. Get started today at amplifier.ancor.org.
  • The impact of the pandemic on community services: ANCOR’s recent research on the impact of the COVID-19 crisis on recruitment and retention. Download the survey report now.
  • Included. Supported. Empowered. Toolkit: This resource offers several tools for connecting stories and data to inspire action. Tools include resources for telling your story, engaging with the media, identifying opportunities to take action and more. Visit WeHaveAStake.org/toolkit today to get started.

Interested in how we can support your advocacy at the federal level? Get in touch by emailing Sean Luechtefeld, ANCOR’s Senior Director for Communications.