The Case for Inclusion 2019

For Advocates

The Case for Inclusion 2021 is, above all, a blueprint for a more sustainable system of delivering community-based supports for people with intellectual and developmental disabilities (IDD). This year’s special report highlights:


  • The impact of the COVID-19 pandemic on community-based providers of IDD services.
  • Steps taken by federal and state governments to support providers during the pandemic.
  • Concrete policy actions that should be undertaken by state Medicaid programs, the Biden administration and the 117th Congress to ensure the longer-term sustainability of the Medicaid disability system.

Advocates should use this information to educate other advocates, providers, families and individuals, policymakers and state administrations on key achievements and areas needing improvement within each state. The information, experiences and policy recommendations offered in the report can support policy reforms and frame debates about resource investments that better support people with IDD. Advocates can also use the information to prioritize those areas that need the most immediate attention and use the facts to support adequate and ongoing funding to meet the immediate needs triggered by the pandemic, supercharge a direct support workforce in crisis and cultivate innovations that lead to better outcomes.


Elected officials should use this report as a guiding document on which issues in their communities need time and attention and, possibly, additional resources or more inclusive policies to improve outcomes for people with IDD.


Those within federal and state administrations should use this report to put their work and accomplishments in context and to chart a course for transitioning beyond pandemic-era operations toward a new normal—one that does not return the Medicaid system to the fragile state it was in before the pandemic.


Additional Advocacy Resources


  • ANCOR Amplifier: The ANCOR Amplifier is a one-stop-shop for learning more and taking action on policy priorities that better enable providers to serve people with IDD in the community. Get started today at

  • ANCOR’s COVID-19 Resource Center: From advocacy actions undertaken by the association and its members to information about how states are prioritizing people with IDD to receive vaccines, ANCOR’s COVID-19 resource center offers a wealth of information. Learn more at

  • Stories of the Pandemic’s Impact on Community Providers: ANCOR’s recent publication, Racing Against the Clock: Preserving Disability Supports During the COVID-19 Pandemic, highlights stories of eight providers and the financial and operational impacts they’ve experienced as a result of the pandemic. Download Racing Against the Clock today.

  • Data on the Fiscal Impact of COVID-19 on Providers: A survey of 700 providers in the earliest days of the pandemic illustrates how COVID-19 has caused revenues to plummet and expenses to skyrocket, all while providers face continued uncertainty about the availability of emergency relief. Read more in ANCOR’s report on the fiscal impact of the pandemic on provider organizations.

  • Included. Supported. Empowered. Toolkit: This resource offers several tools for connecting stories and data to inspire action. Tools include resources for telling your story, engaging with the media, identifying opportunities to take action and more. Visit today to get started.

Interested in how we can support your advocacy at the federal level? Get in touch by emailing Sean Luechtefeld, ANCOR’s Senior Director for Communications.