The Case for Inclusion 2019

About the Case for Inclusion

Since 2006, the Case for Inclusion has been a leading source for data and policy recommendations regarding the effectiveness of state Medicaid programs in serving people with intellectual and developmental disabilities (IDD) and their families. The most comprehensive report of its kind, the Case for Inclusion gives lawmakers, advocates and other disability champions a sense of the scope of the challenges we face—a necessary first step to creating a roadmap for how to drive progress in the states to ensure that people with IDD can live, work and thrive in the community.

About United Cerebral Palsy

United Cerebral Palsy (UCP) is the indispensable resource for people with cerebral palsy and other intellectual and developmental disabilities, such as Down syndrome, autism spectrum disorder and a wide range of other disabilities. Founded in 1949, UCP has 58 affiliates (56 in the US and two in Canada) that provide disability services, including information, resources and referrals, educational instruction, home- and community-based services, housing assistance, workforce training, assistive technology, rehabilitative therapy, early intervention and support for research relevant to cerebral palsy. UCP works on behalf of more than 150,000 children and adults annually at all levels of ability and stages of life and believes people with disabilities deserve to be treated as equal members of an inclusive society to achieve their fullest potential and “live life without limits.”

About ANCOR & the ANCOR Foundation

For more than 50 years, the American Network of Community Options and Resources (ANCOR) has been a leading advocate for the critical role service providers play in enriching the lives of people with intellectual and developmental disabilities. As the 501(c)3 charitable arm of ANCOR, the ANCOR Foundation exists to expand the commitment and capacity of providers and communities dedicated to improving quality of life for people with disabilities.


ANCOR and UCP extend deep gratitude to Lydia Dawson, ANCOR, for her many contributions as lead author of the report. We also thank James Garcia, UCP, and Sean Luechtefeld, ANCOR, for their substantial contributions.

Our organizations are indebted to the numerous external reviewers who provided feedback and guidance in the development of this year’s Case for Inclusion and its accompanying resources. This includes the Case for Inclusion 2022 Steering Committee, which is composed of Ann Coffey, UCP of Oregon; Colleen Crispino, UCP of Long Island (New York); Anne Hindrichs, McMains Children’s Developmental Center (Louisiana); Barry Jardini, California Disability Services Association; Joe Mengoni, UCP Seguin of Greater Chicago (Illinois); and Stan Soby, Oak Hill (Connecticut). This also includes some of the researchers responsible for collecting the data that serve as the cornerstone of the Case for Inclusion, including Sheryl Larson and Lynda Anderson, Institute on Community Integration, University of Minnesota; Dorothy Hiersteiner, Mary Sowers and Laura Vegas, National Core Indicators; and John Butterworth and Jean Winsor, Institute for Community Inclusion, University of Massachusetts Boston.

We are also immensely grateful for staff and volunteers from our respective organizations for their vision, expertise and attention to detail in developing the Case for Inclusion 2022. Specifically, we thank Armando Contreras, Fernanda Morrison and Anita Porco from UCP, and Shannon McCracken, Barbara Merrill and Gabrielle Sedor from ANCOR. Finally, a number of consultants helped in the development and dissemination of this report and its accompanying resources. Special thanks are due to Karyn Baskette of Yondee Designs for the beautiful design of this report; to Michael Walker and Jason Melancon of Data Made Useful for their development of; and to Erin Dennis, Jadel Munguia, Zoe PiSierra and Giovanna Sheerin of BerlinRosen for informing the public relations strategy used to garner visibility for the report.

Contact Us

If you have questions about the Case for Inclusion, including inquiries about the report, this website and/or the data included herein, please contact Sean Luechtefeld via email or by phone at 571.207.9108.