The Case for Inclusion 2019

UCP Case for Inclusion Report 2019

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Case for Inclusion 2019

About the Case for Inclusion

Since 2006, the Case for Inclusion has been the preeminent annual ranking of how well state Medicaid programs serve Americans with intellectual and developmental disabilities (I/DD) and their families. The most comprehensive report of its kind, the Case for Inclusion gives lawmakers, advocates and other disability champions a roadmap for how to drive progress in all 50 states and the District of Columbia for how to ensure that individuals with I/DD are included, supported and empowered in the communities where they live, work and play.

About United Cerebral Palsy

United Cerebral Palsy (UCP) educates, advocates and provides support services through an affiliate network to ensure a life without limits for people with a spectrum of disabilities. Together with 64 affiliates, UCP has a mission to advance the independence, productivity and full citizenship of people with disabilities by supporting more than 176,000 children and adults every day—one person at a time, one family at a time. UCP works to enact real change—to revolutionize care, raise standards of living and create opportunities—impacting the lives of millions living with disabilities. For 70 years, UCP has worked to ensure the inclusion of individuals with disabilities in every facet of society. Together, with its member affiliates, parents and caregivers, UCP will continue to push for the social, legal and technological changes that increase accessibility and independence, allowing people with disabilities to dream their own dreams, for the next 70 years, and beyond.

About the ANCOR Foundation

The ANCOR Foundation exists to expand the commitment and capacity of providers and communities dedicated to improving the quality of life of people with intellectual and developmental disabilities. The Foundation works to amplify the impact of service providers whose programs and resources empower people of all abilities to live independently, enjoy greater accessibility, and experience the self-confidence and self-satisfaction that comes with being an included and valued part of the community.

About Included. Supported. Empowered.

Nearly 5 million people in our country have an intellectual or developmental disability—from Down syndrome to Autism to Cerebral Palsy and a range of others.

Too often, they are undervalued, their abilities overlooked. These are people who enrich the diversity of our communities, our workplaces and our neighborhoods. But the contributions they make go unnoticed, and too often, their potential is unrecognized.

Like all of us, people with intellectual and developmental disabilities, or I/DD, need the support of others to live life to the fullest. But too often, these support networks remain just as invisible as the people whose lives they impact day in and day out. The skill, commitment and hard work of supporting people with I/DD all too often remains in the shadows.

In response, the ANCOR Foundation launched an ambitious multimedia effort—known as Included. Supported. Empowered.—to spotlight the everyday work of professionals who make it possible for people of ALL abilities to thrive as individuals and as active, valued, contributing members of our communities.

Included. Supported. Empowered. showcases successes of people with I/DD, how policies and programs make success possible, how philanthropy enhances these efforts, and how employers and communities provide vital partnerships and opportunities. These are the untold stories of your neighbors, relatives and colleagues.


UCP and the ANCOR Foundation extend deep gratitude to the many people who contributed their time and expertise to the Case for Inclusion. UCP’s Armando Contreras, Michael Ludgardo and Anita Porco, as well as several ANCOR Foundation staff—including Esmé Grewal, Sean Luechtefeld, Barbara Merrill and Gabrielle Sedor—contributed invaluable strategic guidance that significantly shaped the 2018 Case for Inclusion.

We are especially grateful for Tarren Bragdon, who conducted the lion’s share of the research and writing for the support. Special thanks to external reviewers—including John Butterworth, National Association of State Directors of Developmental Disabilities Services; Julie Manworren, Living Well Disability Services; and Amy Saltzman, independent consultant—whose contributions improved the final product presented here. We're also grateful for the contributions of Bonnie-Jean Brooks, OHI, Inc.; Daryn Demeritt, BrightSpring Health Services; Angela King, Volunteers of America Texas; Sarah Magazine, The MENTOR Network; Julie Manworren, Living Well Disability Services and Donna Martin, Community Provider Network of Rhode Island, all of whom provided thoughtful guidance in message development. Finally, we extend our gratitude to Beulah Toth, who designed the beautiful report, and to Michael Walker and Jason Melancon, who developed the website and data applications that make this interactive tool a valuable asset for advocates.

Contact Us

If you have questions about the Case for Inclusion, including inquiries about the report, this website and/or the data included herein, please contact Sean Luechtefeld at or 703.535.7850, ext. 100.